Qualidade da atenção primária prestada aos surdos: perspectivas educacionais para o apoio familiar

Abstract

People with disabilities may naturally need more health services for their comprehensive care and living with a disability causes changes in the life and routine of the family caregiver, placing them in need of care and support. Therefore, the objective of this research is to evaluate the challenges faced in the accessibility of deaf people to health services. Study with a mixed methods approach, carried out at Escola Estadual Professora Elizângela Glória in Palmas, Tocantins during the 2nd Edition of the Surdolímpico Festival. During data collection, 35 family caregivers were interviewed, who were present at the event accompanying the deaf. The data collection instruments used were the socioeconomic and demographic questionnaire (general data on family members and health of people with disabilities) and PCATool-Brasil in the Reduced Child Version (extension of the essential attributes on PHC accessibility). The results showed that 85.71% of caregivers were women, with a predominance of higher education (65.71%), and that 60% of deaf people had profound hearing loss. The analysis revealed that 54.3% of caregivers reported that the health service sees the child on the same day they become ill, but 65.7% had difficulties scheduling review appointments. Linear regression identified that the degree of kinship was significantly associated with the accessibility score (p = 0.021). It is concluded that, despite the greater perception of accessibility among primary caregivers, there are still structural barriers that affect deaf people's full access to health services.